The Turner Syndrome Society of the United States (TSSUS) advances knowledge, facilitates research, and provides support for all touched by Turner syndrome (TS).
About Us
The Turner Syndrome Society of the United States (TSSUS) advances knowledge, facilitates research, and provides support for all touched by Turner syndrome (TS).
Turner syndrome is a non-inherited chromosomal condition that describes 1 out of 2,500-4,000 girls, and women with common features and physical traits. Our vision is that every woman and girl with Turner syndrome will have cutting-edge health care ensuring the best quality of life.
The Society creates, coordinates, and provides health-related resources to patients, families, and physicians for the diagnosis and treatment of Turner syndrome. We offer most services at no cost to thousands of people annually. Additionally, we provide opportunities for people to exchange information on topics related to living with TS through peer-expert volunteers. TSSUS chapters and support groups throughout the country hold local events and over 700 individuals with TS and their family members annually attend the TSSUS conference.
Organization Mission Statements and About Us information are provided by GuideStar.
The Turner Syndrome Annual Conference will be held in Arlington, VA on July 13-15, 2018. Learn more by visiting, https://www.turnersyndrome.org/national-conference
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Turner Resource Network Symposium
The Turner Syndrome Resource Network Symposium will be held July 15-17, 2018 in Arlington VA. Renowned XY chromosome researchers will discuss TS research in the 21st Century. Find out more at https://www.turnersyndrome.org/symposium
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